But Maybe Tomorrow

This is a positive space for people who suffer from chronic pain (cervicogenic headaches + other neurological issues) related to upper cervical dysfunction to come together, support each other, and share their stories and experiences.

If you're new to my blog, here's a quick gist...

In July of 2011, I had a mountain biking injury that changed my life forever. In the months that followed, I gradually developed a cervicogenic headache, which progressed in frequency and intensity over the next year. For the last 4 years, I've lived with my intractable headache 24 hours a day, 7 days a week. In 2013, I left my job to focus full-time on finding a resolution to my pain. In the time since, I have seen well over 100 medical practitioners all over the country. Through a not-so-straightforward process, I was ultimately diagnosed with a severe C1/C2 instability (10mm excursion with side bending one direction and 8mm the other), along with capsular synovitis/dens of c2 compressing my spinal cord, and cerebellar tonsillar ectoptia. In the fall of 2015, it was corrected with a C1/C2 fusion and craniectomy (Dr. Franck), but 6 months later, I still live every waking moment with a moderate to severe headache and continue trying to solve the complex problem that is chronic pain.

I began writing this blog in 2013 simply to document my own medical journey, but over the last few years (and last 6 months, especially), I've been contacted by so many people from all over the world who are on similar paths and searching for the same answers. If you're one of those people, you know how challenging, life-altering, exhausting, and at many times - downright discouraging this process can be. Even with all of the medical expertise that exists, there is no set roadmap to follow. But that doesn't mean the solutions aren't out there. That's why I'm hoping we can use this space to help each other by sharing any and all personal learnings, treatment options and outcomes. If nothing else, let's just let each other know that we're not alone trying to figure it all out.
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